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    • Living with ME/CFS
    • Rights and Systems
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    • Work and Money
    • Relationships and Identity
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The Napping Sloth

Living and working with ME/CFS and chronic illness in the UK

  • A sleepy sloth curled in an armchair by a window, an open golden birdcage and a set of house keys on the sill beside it.

    Keys, Crystals and a Gilded Cage

    November 8, 2026 - By Jake

    A close friend just got the keys to her own flat, and I couldn't be prouder. It also made me look at my own life, and the cage I'm grateful…

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  • A tired sloth holding medical paperwork while being assessed by shadowy figures, symbolising having to prove you are disabled enough to access support.

    Proving I’m “Disabled Enough”

    January 30, 2026 - By Jake

    Hi friends. I want to talk about something that has drained far more energy than it ever should have. This is about having to prove you are disabled enough to…

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  • A lonely sloth sits indoors with a game controller, watching friends playing together outside the window. The sloth looks tired and left out.

    The Loneliness That No One Sees

    November 14, 2025 - By Jake

    Living with chronic illness means moving through life at a slower pace, and lately that difference has left me feeling more isolated than I expected. All I wanted was a…

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  • A tired-looking cartoon sloth sits at a desk, resting its face on one hand, surrounded by messy stacks of paperwork. A document on top is titled “Keep Britain Working”. The sloth looks exhausted and unamused, as if overwhelmed by the report in front of it.

    A Quiet Warning for the Chronically Ill: What the “Keep Britain Working” Plan Might Really Mean for Us

    November 6, 2025 - By Jake

    A government report claims it will help sick and disabled people stay in work, but for those of us with energy-limiting conditions, the reality may be very different. Here’s why…

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  • A close-up of three colourful enamel pin badges attached to a backpack strap. One is a rainbow “Be You” badge, another is a cartoon cat in the colours of the trans flag, and the third is a smiling sloth hugging a takeaway coffee cup.

    From Heavy to Hopeful: What I Found at Pride

    August 17, 2025 - By Jake

    I went to my first Pride this weekend, and it was everything I didn’t know I needed. From badges and stickers to emotional conversations with my Mum, I felt truly…

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  • A soft, fluffy sloth with gentle brown-and-cream fur sits in a warmly lit room, holding a small progress pride flag in one hand and a bisexual pride flag in the other. Around the sloth are cosy personal items, books, and plants, creating a safe, supportive atmosphere. The sloth’s expression is calm and thoughtful, symbolising care, identity, and solidarity.

    When Silence Feels Louder Than Words

    August 12, 2025 - By Jake

    The world feels heavier lately. Rights are being chipped away, safety nets are shrinking, and the people I care about are being pushed to the margins. As someone living with…

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  • A tired, fluffy sloth sitting thoughtfully in a cosy room, looking worn out.

    Navigating Family Bonds and Personal Struggles

    November 13, 2024 - By Jake

    Life has been plodding along, and I just wanted to get a few things off my chest. We’ve had some health scares in the family recently, which have taken a…

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  • A sloth beside a drink and book in soft evening light.

    Plants, Love, and Letting Go

    October 22, 2024 - By Jake

    Lately, I’ve been focusing more on my well-being, and one of the key changes has been my prescription for medical cannabis. It’s been incredibly helpful in managing the symptoms of…

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  • A fluffy sloth working slowly and carefully with a 3D printer.

    It’s Been a While: Finding Balance and Embracing New Beginnings

    September 24, 2024 - By Jake

    Living with Chronic Fatigue Syndrome (CFS) and Fibromyalgia has taught me a lot about limitations—both my own and those of the people I care about. Over time, I’ve had to…

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  • A realistic sleeping sloth nestled in tree branches in a foggy room, creating a serene atmosphere.

    The Delicate Balance: Sleep, Relationships, and Navigating Chronic Illness

    February 18, 2024 - By Jake

    In the labyrinth of managing chronic conditions like Chronic Fatigue Syndrome (CFS) and Fibromyalgia, sleep becomes both a sought-after sanctuary and a battleground. The introduction of Mirtazapine into my regimen,…

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Recent Posts

  • Keys, Crystals and a Gilded Cage
  • Proving I’m “Disabled Enough”
  • The Loneliness That No One Sees
  • A Quiet Warning for the Chronically Ill: What the “Keep Britain Working” Plan Might Really Mean for Us
  • From Heavy to Hopeful: What I Found at Pride

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  1. Allison on Legos, Wizards, and London: My Not-So-Typical Week

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